Have your say in the Government’s PIP review

Cerebral palsy affects around 130,000 adults in the UK, yet routine health checks for our community are not guaranteed. We’re demanding annual health checks for ALL adults with CP, regardless of age. #GPsForCP

We are UP. What we are aiming to achieve and why it is so important.

Midweek Matters

 

Our weekly Wednesday sessions bring the community together to share experiences, hear from experts, and explore topics that matter to adults with cerebral palsy.

CP Charter

 

Add your name to the Cerebral Palsy Charter and help us move CP up the political agenda

Icon of three men of different colours
130,000

UK adults living with Cerebral Palsy

Icon of child next to man with walking stick
20- 50 %

of adults with CP have deteriorating mobility with age

The number 30, with rising arrow
30

Cerebral Palsy is nearly 30 times more common than muscular dystrophy

“I feel like I found a lot more answers to how I have been feeling about having CP. Your website is very useful, thank you.”
Sophie Owen, community member

“The UP team is doing incredible work to bring the #CerebralPalsy community together!”
Dom Sphere, Disability Plus

“It was wonderful to connect with others and not feel so alone trying to be fashionable. Looking forward to the next meeting!”
Cplifeandme, community member

“Absolute pleasure working with UP to enable better multidisciplinary care for children, young people and adults with CP to ensure optimal outcomes.”

Lawrence Ambrose, Royal College of Podiatry

News & Events

 

Share your experience of health and care services for adults with cerebral palsy through Healthwatch’s online survey.

July 29, 2026

This year, we responded to the UK government’s call for evidence on its new Mental Health Strategy. We wanted decision makers to understand something that too often gets missed: cerebral palsy does not end at eighteen, and neither should the support that comes with it.

July 20, 2026

We have read the interim report of the Timms Review of Personal Independence Payment (PIP) and shared it with our community. Here is what we think, and what we are asking for.

July 20, 2026