This event, hosted by the Royal College of Medicine, was by turns informative, moving and inspiring. Thank you to all the speakers, and everyone who attended in-person or online.
Here is a chance to catch up on the event: view the replay. The contents of the event, with timecodes on the video replay, are below.
The interpretation of this content was recorded live and may contain errors due to the live nature of the content, speakers and preparation materials provided. Please keep this in mind when watching.
Download this Reading List for a list of references relevant to the topics covered.
2.20
Emma Livingstone, Co-Founder and CEO, UP
It’s time for a new approach to Adults with CP – our founder Emma explains how this is reflected in our new name and brand.
5.58
Dr Mark Peterson, Associate Professor, University of Michigan Medicine
He explains how we need to shift thinking around CP to be seen as “the most common lifetime physical disability” rather than as a pediatric onset disability only.
23.17
Scarlett Murray, Blogger
A moving presentation made by Scarlett Murray, and her father Al. Scarlett is a young mother, and talented writer about her CP life experience.
38.57
Professor Jan Willem Gorter, Head and Professor of Pediatric Rehabilitation Medicine, University Medical Centre, Utrecht
He talks about the complexity of Cerebral Palsy and how it is more than a physical difficulty.
57.03
Natalie South-Law, Disability Lead at the sport for development organisation, Sported.
As a person with CP herself, she talks passionately about improving the experience of engaging in sport for young disabled people.
1:09.45
Dr Kirsty Colquhoun, consultant geriatrician working in Greater Glasgow and Clyde
As someone with Cerebral Palsy, Kirsty presents her ideas on how we improve health services for those with CP.
1:19.09
Jean Martin, retired podiatrist
Jean shares her life experiences with CP, reflecting on how this has changed over her 73 years.
1:30.08
Q&A panel with previous speakers: Dr Mark Peterson, Natalie South-Law, Dr Kirsty Colquhoun and Jean Martin.
1:39.38
Dr Elisabet Rodby Bousquet, Associate Professor at Lund University and National Coordinator, CPUP Centre for Clinical Research Västerås, Uppsala University
She talks about what we can learn from the Swedish experience of implementing a systematic follow-up of adults with CP.
1:50.48
Liz Keenan, Clinical Nurse Specialist, National Hospital for Neurology and Neurosurgery
and Dr Dipesh Patel, Psychologist, Neuropsychiatry and Neuropsychology department, National Hospital for Neurology and Neurosurgery
The transition period makes many feel isolate and overlooked. Our two speakers explore the relationship between the healthcare professional and the individual with CP through the transition period
2:01.44
Lily Collison, Programme Director at Gillette Children’s Press
Lily’s adult son has spastic diplegia, and here she talks about how there weren’t any books explaining his condition, so she had to write one.
2:21.03
Mr Michail Kokkinakis, consultant children’s orthopaedic surgeon
He highlights the need for all individuals with CP in the UK to receive orthopaedic treatment before they transition – this early intervention will reduce problems in adulthood.
2:34.30
Q&A panel with previous speakers: Dr Elisabet Rodby Bousquet, Liz Keenan, Dr Dipesh Patel, Lily Collison and Mr Michail Kokkinakis
2:48.08
Baroness Stephanie Fraser, Chief Executive Officer of Cerebral Palsy Scotland
She explains the role of the All-Party Parliamentary Group on Cerebral Palsy (of which she is a leading member), and the importance of implementing its recommendations.
2:56.48
Emma Livingstone, Co-Founder and CEO, UP
Our founder Emma emphasises the importance of ensuring adults with CP have access to clinicians who understand our needs. It’s time for change.
Bonus:
Carrie-Ann Lightley, one of the UK’s leading accessible travel bloggers
Carrie-Ann has Cerebral Palsy and is a wheelchair user. She talks about the challenges she has overcome, and how travel should be accessible to everyone.
This was not able to be seen on the day, but can be viewed here: