CHARITY REBRANDS TO CAMPAIGN FOR RIGHTS OF ADULTS WITH CEREBRAL PALSY
Today we announced our rebrand as UP – The Adult Cerebral Palsy Movement, at a conference held at the Royal Society of Medicine in London entitled, Time for a new approach to adults with Cerebral Palsy.
When we started Adult Cerebral Palsy Hub, five years ago, we talked about the inadequate provision for adults with CP and said: “The impact of these failings is unnecessary pain, reduced quality of life and avoidable medical problems for sufferers and increased cost and strain on already stretched health and social care services.”
Today, we could write exactly the same sentence. Even after the publishing of the NICE guidelines setting out what adequate care for adults with CP should look like and be provided. Even after the comprehensive reports and clear recommendations from the All-Party Parliamentary Group for Cerebral Palsy.
We need a louder, stronger, more forceful voice to get the healthcare we need and deserve. And we need to be a larger, more engaged community to give each other the support we need to live our best lives.
Emma Livingstone, CEO and Co-founder, says, “130,000 adults with Cerebral Palsy need a louder, stronger, more forceful voice to get the healthcare we need and deserve. Our movement is also about positively making the changes in ourselves, and in society, so that we can live our best lives.”
Our movement is about positively making the changes in ourselves, and in society, so that we can live our best lives. It is rooted in our belief in our own power, standing up for ourselves and our rights, and combatting ignorance, prejudice and indifference.
The conference, chaired by BBC Newsreader Samantha Simmonds, was attended by over 250 clinicians, researchers and adults with Cerebral Palsy, to discuss innovative solutions for a better future.
We partnered with the Royal Society of Medicine and considered the challenges faced by the 130,000 community of adults with cerebral palsy, the lack of coordinated care, and how this impacts them achieving full-life participation. Speakers explored innovative solutions for a better future, using insights from professionals and patients living and working with the condition.
Read more about the speakers in attendance here https://upmovement.org.uk/medicine-and-me-time-for-a-new-approach-to-adults-with-cerebral-palsy-replay/